So here's the latest. We've had a few people ask lately, so I figured I'd write it down for those who may still check this blog.
Aaron's a champ! You'd never know he was sick if you didn't already know. He works hard, and is trying really hard to keep his head in the game. But, unfortunately he doesn't feel like we wish he could. My last blog post in May I talked about the new drug he was starting. He was doing pretty good this summer and we felt a glimmer of hope for a bit that maybe this was the answer to this 2 year journey of finding a medication to slow the progress of his MS. But, we've had some bumps again and wonder if this medication will do what it needs. I can't remember all thats gone on. But really we've had a few times where he felt like he was back to first times he was diagnosed. Numbness, fogginess in his mind, exhaustion and just plain not feeling good. A few weeks ago he went in for a dose of steroids to help the numbness subside. It seemed to do the trick for that. As far as everything else. Its about the same.
Sleep has become vital, and he is finally allowing himself to sleep in a little longer in the mornings. Our biggest problem is if he gets woken up during the night, then he can't go back to sleep! Which then affects him the next day and starts a domino effect for days after. Sadly, we've again, got 4 kids under 5. It is a rare occasion to not have at least 1 wake us up in the night, if not more. I try to get to the kids before he wakes up, but some nights, I'm so exhausted, I don't hear them first and Aaron gets woken up. I then feel horrible, because then he doesn't get back to sleep. WE are trying some sleep meds, but if he takes them too late in the early morning, he has a hard time getting up. So our hands are tied at this time. I'm tempted to make him sleep in the basement, but he's not quite to the point he will do it yet. Ugh! Tricky stuff. Hopefully soon, the baby will at least sleep through the night and we will have more nights than not, where no one wakes up.
Diet. WE are struggling with this and direction to go. We know food has a huge impact on him. But, its so hard to know the direction. I'm struggling with prepping, cooking and buying the things that will keep him healthy. I'm feeling so overwhelmed with everything else in my life, that I'm lacking in the supportive cooking wife section. If anyone has suggestions... I'd love to hear them! He needs to do something. We pretty much know what to do, but its the money, time, and energy to get there that makes it hard.
There are a few other things he is facing right now, that are definitely too private to discuss on the blog. But, every prayer is welcome.
For the most part. He is a hard working, happy and optimistic person. I feel that we will figure this all out and will find MS to be more of a nuisance than something to fear. I hope at least. For now, we keep testing what works and doesn't and hopefully gain some ground in the future.
Thanks for reading.
