Saturday, January 31, 2015
MRI
Well, things didn't quite go as we thought with Aaron's last dose of sole medrol. We had hoped it would stop his symptoms and he'd be feeling better by now. But, unfortunately it hasn't. The numbness and pain are still there and have travelled further down into his foot. He is says it isn't too painful, just irritating and frustrating. Aaron called the Dr. office Wednesday to see what this means. They weren't for certain, but are guessing he is having an actual relapse of MS. The only way to know for certain is to have his MRI a little early. If it is an actual relapse, then this might mean a No go on the medication and a start all over of something new. Bummer. Not the news we want to hear. It's frustrating because he had 9 months of really good health. To see that decline and the reality that this disease will truly never go away is hard. But, we can't get down yet. We really just need to see the MRI results and then go from there. Once those are in, I'll hopefully be able to tell you more. WE are glad he's getting the MRI earlier due to insurance and upcoming events in life. I hope it gives us the answers we need too.
Tuesday, January 27, 2015
Update...
Our hope was that Aaron would continue his long stretch of no relapses in the year of 2015, but sadly at the beginning of Jan. the 9 month stretch ended. Boo!
Aaron began to experience, numbness, and some pain on his left side again, along with sleepless nights and a lot of discomfort. I always feel bad when he gets like this. It must be a real pain and confidence crusher. Of course Aaron pushes through it, doesn't tell anyone and deals with it quietly. He's learned though not to toy with it and as soon as the pain comes, to do something about it. I'm glad he is getting better about doing this. Thus, he went in for infusion treatments the next week and feels like they helped a ton.
I'm grateful there is a fast fix to helping these symptoms. I wish I understood more, if it is helping the problem. At least, he can go back to his same old self after these infusions. We are always grateful that the MS is not manifesting itself in another area. I guess that means bigger troubles if it is. So our hopes are, if the symptoms are back, that at least they stay on the left side.
We did feel it was a tender mercy the flare up came on when it did, since the next week we left for our family vacation. The infusion is like a shield for about 6 weeks. So he had the extra help while we were gone for his immune system and treatment of symptoms. Which was comforting to me, especially since we went to Disneyland where there was just a measles out break. Plus he had to do a lot of physical walking, driving and some sleepless nights.
Aaron's a trooper. We are learning of so many that deal with autoimmune diseases. They are horrible and can be such a set back in life. Yet, so many are persevering through pain and trials and just living life to the best they can despite their physical difficulties. I hate that out of all the autoimmune diseases Aaron has to have the one that attacks the brain! But, I am proud of Aaron and his way of facing this trial in his life. Though it is truly a daily struggle for him, he is pushing forward with such optimism and desire to not let it stop him. There are days when it does, that's got to be frustrating. But he pushes on and is stalwart. I truly look to him as an example. We all face trial, but not letting it stop us is truly an accomplishment.
Hang in there babe! Love ya! Keep up the perseverance and know we are rooting for you!
Aaron began to experience, numbness, and some pain on his left side again, along with sleepless nights and a lot of discomfort. I always feel bad when he gets like this. It must be a real pain and confidence crusher. Of course Aaron pushes through it, doesn't tell anyone and deals with it quietly. He's learned though not to toy with it and as soon as the pain comes, to do something about it. I'm glad he is getting better about doing this. Thus, he went in for infusion treatments the next week and feels like they helped a ton.
I'm grateful there is a fast fix to helping these symptoms. I wish I understood more, if it is helping the problem. At least, he can go back to his same old self after these infusions. We are always grateful that the MS is not manifesting itself in another area. I guess that means bigger troubles if it is. So our hopes are, if the symptoms are back, that at least they stay on the left side.
We did feel it was a tender mercy the flare up came on when it did, since the next week we left for our family vacation. The infusion is like a shield for about 6 weeks. So he had the extra help while we were gone for his immune system and treatment of symptoms. Which was comforting to me, especially since we went to Disneyland where there was just a measles out break. Plus he had to do a lot of physical walking, driving and some sleepless nights.
Aaron's a trooper. We are learning of so many that deal with autoimmune diseases. They are horrible and can be such a set back in life. Yet, so many are persevering through pain and trials and just living life to the best they can despite their physical difficulties. I hate that out of all the autoimmune diseases Aaron has to have the one that attacks the brain! But, I am proud of Aaron and his way of facing this trial in his life. Though it is truly a daily struggle for him, he is pushing forward with such optimism and desire to not let it stop him. There are days when it does, that's got to be frustrating. But he pushes on and is stalwart. I truly look to him as an example. We all face trial, but not letting it stop us is truly an accomplishment.
Hang in there babe! Love ya! Keep up the perseverance and know we are rooting for you!
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