A few people have been asking how the second dose of the medication is going... It hasn't been too bad. Well at least from what Aaron says it hasn't, but I never truly know with him! He definitely has had some of the side effects, but he is able to go about his normal day fairly well. He continues to be exhausted and at times not feeling the greatest. We are taking things slowly and not doing as much as usual. We had a great little relaxing trip over the weekend, where Aaron could take naps, take it easy and focus on other things. It was a good time to do it since he was doubling his dose. Today he had some problems with his MS and we are hoping it goes away. He of course is upbeat and staying positive as always. Nothing seems to slow this kid down.
Just so you all know it is Aaron's birthday on Sunday! If you want leave him a birthday comment or email me. I know he could use a little pick me up right now! Stay tuned and we will keep you all posted on how things continue to go!
Love the Meacham fam
Monday, July 29, 2013
Sunday, July 21, 2013
Just feeling Yucky!
Aaron is such a fighter and so faithful. I really stand in awe at him and his strength. He is much stronger and more faithful than I could ever imagine to be. I feel so blessed to have his faith and example in my life. We continue to see many little miracles though and feel so grateful for our knowledge in God's plan for us.
I do want to give a shout out to Aaron's friend Ben who came on Sat. and helped Aaron with some of his school work. It was truly another little tender mercy of the Lord and we thank Ben for his time and sacrifice to do that.
We have some appointments set up for this month to get some paper work done and then a follow-up visit in October with the specialist. Until then and as long as things are not too bad, this is pretty much all there is to tell. I may write to share a few feelings, little things we experience or learn, and how Aaron is feeling. But, forward we go.
Tuesday, July 16, 2013
Update
I have had a few people ask me for an update on what is going on. We've actually had another little miracle today! Aaron's medication showed up on our door step. It took less than a week! They were telling us it might be a month or more! Ours took less than a week. They called Monday to tell us that it was on its way and today it was there on or door step. I really can't explain what a special blessing that is! I am telling you all those prayers, fasting and more prayers have really paid off! Thank you, thank you to those who have cared and remembered our family!
We are anxious to get him started on the drugs tomorrow, but a little nervous... Aaron especially. We re-read all the side effects tonight and are hoping he doesn't experience many of them. We will just have to wait and see.
As far as Aaron's health goes. Physically he is doing pretty good, he has had a pop up here or there of his speech slurring. We are hoping that the drugs will kick in pretty quick here before he might have another flare. We are pretty confident he will be okay.
He had another MRI done on Saturday. It was long and rough. I think he is ready to be done with those for awhile. They are a little bit of drain emotionally for us both, and I think we are hoping the results will be good. He also finished up his blood work. I think he is happy to have all the poking done for now. We don't know the results of those tests, and probably won't for awhile. I have been asked several times what they found, and unfortunately it may not be something we know fully all about until his next official doctors appt. We do know if something really bad were to come up, then they would call us in. We will try to keep you posted on anything we learn.
Here we go, we are trying to live our lives normal once again. Most days have been good and we even feel like we are normal again and this was all a bad dream. But, we do have those days where we wake up and still question, wonder and fear. I'm not sure we've completely faced it all and feel like we are totally strong about it. That will come with time. We appreciate the love and support of those close to us. We have felt so much love. Thank you for your patience with us as we are trying to figure this all out. Some days I personally just don't want to talk about it, and others I do. We don't want to make people feel bad if we aren't up to talking about it, we just are trying to face it one day at a time. That is mainly why we have the blog. We hope it answers questions and allows you to understand where we are coming from.
Much love,
The Meacham's
We are anxious to get him started on the drugs tomorrow, but a little nervous... Aaron especially. We re-read all the side effects tonight and are hoping he doesn't experience many of them. We will just have to wait and see.
As far as Aaron's health goes. Physically he is doing pretty good, he has had a pop up here or there of his speech slurring. We are hoping that the drugs will kick in pretty quick here before he might have another flare. We are pretty confident he will be okay.
He had another MRI done on Saturday. It was long and rough. I think he is ready to be done with those for awhile. They are a little bit of drain emotionally for us both, and I think we are hoping the results will be good. He also finished up his blood work. I think he is happy to have all the poking done for now. We don't know the results of those tests, and probably won't for awhile. I have been asked several times what they found, and unfortunately it may not be something we know fully all about until his next official doctors appt. We do know if something really bad were to come up, then they would call us in. We will try to keep you posted on anything we learn.
Here we go, we are trying to live our lives normal once again. Most days have been good and we even feel like we are normal again and this was all a bad dream. But, we do have those days where we wake up and still question, wonder and fear. I'm not sure we've completely faced it all and feel like we are totally strong about it. That will come with time. We appreciate the love and support of those close to us. We have felt so much love. Thank you for your patience with us as we are trying to figure this all out. Some days I personally just don't want to talk about it, and others I do. We don't want to make people feel bad if we aren't up to talking about it, we just are trying to face it one day at a time. That is mainly why we have the blog. We hope it answers questions and allows you to understand where we are coming from.
Much love,
The Meacham's
Thursday, July 11, 2013
Answers
Yesterday we finally were able to get a clear idea about Aaron's disease and start planning our next step. Though some of the things discussed at the Doctor weren't easy, we left feeling like we were on cloud 9...we finally have a direction and hope for Aaron's health.
The past two days have been a whirlwind, tiring and hard, but in hind sight, they have been really informative and good.
Yesterday, around 12:30 we headed into the Specialists office. After about a half hour of paper work and another 20 minutes of waiting we were lead back to a room. In there the nurse took Aaron's vitals and then we waited some more. It was amazing though how this time around we were so calm. It was so comforting to just know we were there and that we were finally going to talk to someone who really could help!
After a little while the PA came in. She was kind older women who knew her stuff. She started at the beginning. She had all our recent events from the ER to nuerologist written down already. I was amazed at how well the hospital/nuerologist had recorded our experience thus far. It saved the PA some time. Anyways, we went through every symptom and experience we could recall these past few years that might have been a sign, symptom or episode Aaron had. She recorded everything. She then examined him, and asked many more very thorough questions. I was amazed how long she spent talking, questioning, and examining. I believe it was over an hour. It was so comforting that she was looking at it from every aspect. We actually started to realize that there have been a lot more episodes or symptoms that Aaron had these past few years that most likely were flare ups from MS. The more we talked the more we learned and discovered. She was very good at explaining why she asked certain question and how those questions could link things to MS. I was very impressed. It was already a night and day experience from the nuerologist.
After a long chat, and she finished the exam she went to meet with the doctor. They discussed things for awhile I suppose. About 20 minutes later Dr. Foley came in. He was the jolliest and kindest man. He was very kind and very on top of it... we were impressed! He definitely knows his stuff. He began by asking a few background questions, but seemed to have a pretty good idea already from what his PA had told him about Aaron's case. He asked who had referred us to him and we told him Dr. Hasleton. He was like, "Yes, he called me that very day you were in the ER. I'm sorry I've been out of town and that we are just meeting!" We knew Dr. Hasleton had had our backs all this time!
Anyways, he started with bringing up the brain scans. He reviewed them once again. We were a little more prepared this time to see them and hear what he had to say. I don't really want to go into the details of it all. I will just say it was hard to see and hear. But, we aren't going to focus on that, because it is what it is... it is done and we are moving forward now. After that he mentioned the rare case that Aaron was. He had no hereditary link to MS, his symptoms are a lot less common than some MS patients, and he was testing positive in his blood work to another disease that shows itself much like MS. But... the brain scans pretty much identified that it was definitely MS. Even with the confidence that it was they will still have Aaron get tested for the other stuff to double check.
He then started sharing his thoughts about Aaron's condition and where we go from there. The good news from what he shared is that Aaron has the type of MS called RRMS. Which means it can be pretty well controlled through drugs! Which also means that if we get him on the right drug, it will most likely either slow or stop the nerves from being damaged. It doesn't make MS go away, but it controls it and allows a person to live a pretty normal life. This was encouraging to hear. He continued to tell us that we need to get Aaron started soon. I guess MS is more common in women and less aggressive, but when men get it, it is a lot more rare and much more aggressive. With that said, the sooner we can get him medicated the better. He then started talking about the drug options. I liked his approach so much better than what the nuerologist had said. He said there are certain kinds of "old" drugs (like the ones the nuerologist wanted us to take) but the newer drugs were much more effective. He said that one of these was the drug he wanted Aaron to start using. It is pretty aggressive and should really help him. The good news is, if it doesn't do the trick, there is an even stronger medication available. The reason Aaron can't be on that yet, is the insurance companies want evidence that we tried other medications first and they weren't doing the trick. So silly, but unfortunately how it goes. But, we feel good about the medication Aaron will be taking. It is an oral medication which is huge. Most old MS medications are given through a syringe (shot). Unfortunately, wether they are old or new meds, they all have nasty side effects. The med that Aaron will be on, starts out okay for the first week, but on the second week the double the dose and then some not so fun stuff could and most likely will appear. If it gets too bad, they can go back, readjust the dosing and then go back and more slowly introduce him to the larger doses. But, we really need him, if we can to get on those high doses quickly! The other downside to the medication is the time it will take before we actually get it! It will most likely take a month or more. I guess it is very hard to get the insurance companies and drug companies to work together to approve the drug. There is a big process and it will take some time. Once it does get approved they only have special pharmacies that actually make the drug. This type of med. is made in a pharmacy that will actually get it, and then mail it out to our home. So we are in a waiting game again with the drug. Once that it finally does come, Aaron will take it for 3 months and then we will go back and reevaluate if it is working. I just keep thinking, can you imagine if we had to have waited clear until September for our first appointment??? then it wouldn't have been until oct/nov until we even started the drug and who knows it if will even work. We are so glad we got in yesterday for this very reason!
After Dr. Foley left, the PA went ahead and introduced the drug to us, told us all the details, symptoms and what to expect. She then set us up for Aaron's next MRI and blood work. Then we were done. We walked out, overwhelmed but elated that finally we have some direction.
What a blessing and miracle that we were able to get in and even more so, to get going on ordering the drug and moving forward. We are finally to the point where we can actually accept the fact that MS will be part of the rest of our lives. It is still hard, I find myself at times wondering and having some sadness. I have listened to a lot of talks the past few days about faith vs. fear.
Common questions we keep getting and their answers:
1. If we had discovered Aaron had MS earlier, would it have helped?
Well, just like any disease, it is good to catch and start treating. But, we are not going to go there and wonder what if? We can't, and we can not dwell on it. Again, as I said before, it is what it is and we have to move forward.
2. What are Aaron's limitations going to be?
We don't know that exactly. MS affects everyone very differently. We are going to to ease him back into the his life and goals. Then we will see where it takes us. Who knows maybe it will push Aaron to new limits? Check out this link if you get a second and you will see what I mean:
http://www.ksl.com/?sid=
3. Do MS people die earlier than expected?
Yes, I know people have been wondering this question and I did to in the beginning. Just like us all, we don't know when our time will be to go. But, with most people with MS they say their life span should generally be the same. It is crucial though that they take good care of themselves and monitor the disease closely.
4. Is Aaron having symptoms now?
After receiving the steroid infusions for 3 days, Aaron's symptoms are about 90% gone. He still finds times he is having to focus on what he is saying and he has experienced some exhaustion. Other than that things are pretty normal. I am sure the shock of this all has caused some other things to be a little off, but hopefully between now and the time he starts his drug he will not have anymore flares. It so, he will go back for more steroid infusions.
5. What other things other than medication are you doing?
We've heard it all by now. We've read it all and keep getting told by many what we should do. In the long run, we are going to follow the advice of Dr. Foley. Aaron is going to keep doing a mild exercise program and change his diet, which means mine too. We are going to start slowly introducing ourselves to a more Mediterranean diet. We feel like this will be a good starting place for our family and then we will see where we go from there.
http://www.mayoclinic.com/health/mediterranean-diet/CL00011
Well if you really read this whole thing, I am impressed. This was quite the novel. It feels good though to get my thoughts out and to not have to retell the details over and over. Not that we mind talking to people about this, it is just easier to talk to people about it after they know more themselves.
We found out today that Saturday Aaron will have his second MRI and blood work. We are really hoping and praying they don't find any scarring or lesions on his spinal cord. We will keep you posted once we know more.
loves! from the Meacham's
The past two days have been a whirlwind, tiring and hard, but in hind sight, they have been really informative and good.
Yesterday, around 12:30 we headed into the Specialists office. After about a half hour of paper work and another 20 minutes of waiting we were lead back to a room. In there the nurse took Aaron's vitals and then we waited some more. It was amazing though how this time around we were so calm. It was so comforting to just know we were there and that we were finally going to talk to someone who really could help!
After a little while the PA came in. She was kind older women who knew her stuff. She started at the beginning. She had all our recent events from the ER to nuerologist written down already. I was amazed at how well the hospital/nuerologist had recorded our experience thus far. It saved the PA some time. Anyways, we went through every symptom and experience we could recall these past few years that might have been a sign, symptom or episode Aaron had. She recorded everything. She then examined him, and asked many more very thorough questions. I was amazed how long she spent talking, questioning, and examining. I believe it was over an hour. It was so comforting that she was looking at it from every aspect. We actually started to realize that there have been a lot more episodes or symptoms that Aaron had these past few years that most likely were flare ups from MS. The more we talked the more we learned and discovered. She was very good at explaining why she asked certain question and how those questions could link things to MS. I was very impressed. It was already a night and day experience from the nuerologist.
After a long chat, and she finished the exam she went to meet with the doctor. They discussed things for awhile I suppose. About 20 minutes later Dr. Foley came in. He was the jolliest and kindest man. He was very kind and very on top of it... we were impressed! He definitely knows his stuff. He began by asking a few background questions, but seemed to have a pretty good idea already from what his PA had told him about Aaron's case. He asked who had referred us to him and we told him Dr. Hasleton. He was like, "Yes, he called me that very day you were in the ER. I'm sorry I've been out of town and that we are just meeting!" We knew Dr. Hasleton had had our backs all this time!
Anyways, he started with bringing up the brain scans. He reviewed them once again. We were a little more prepared this time to see them and hear what he had to say. I don't really want to go into the details of it all. I will just say it was hard to see and hear. But, we aren't going to focus on that, because it is what it is... it is done and we are moving forward now. After that he mentioned the rare case that Aaron was. He had no hereditary link to MS, his symptoms are a lot less common than some MS patients, and he was testing positive in his blood work to another disease that shows itself much like MS. But... the brain scans pretty much identified that it was definitely MS. Even with the confidence that it was they will still have Aaron get tested for the other stuff to double check.
He then started sharing his thoughts about Aaron's condition and where we go from there. The good news from what he shared is that Aaron has the type of MS called RRMS. Which means it can be pretty well controlled through drugs! Which also means that if we get him on the right drug, it will most likely either slow or stop the nerves from being damaged. It doesn't make MS go away, but it controls it and allows a person to live a pretty normal life. This was encouraging to hear. He continued to tell us that we need to get Aaron started soon. I guess MS is more common in women and less aggressive, but when men get it, it is a lot more rare and much more aggressive. With that said, the sooner we can get him medicated the better. He then started talking about the drug options. I liked his approach so much better than what the nuerologist had said. He said there are certain kinds of "old" drugs (like the ones the nuerologist wanted us to take) but the newer drugs were much more effective. He said that one of these was the drug he wanted Aaron to start using. It is pretty aggressive and should really help him. The good news is, if it doesn't do the trick, there is an even stronger medication available. The reason Aaron can't be on that yet, is the insurance companies want evidence that we tried other medications first and they weren't doing the trick. So silly, but unfortunately how it goes. But, we feel good about the medication Aaron will be taking. It is an oral medication which is huge. Most old MS medications are given through a syringe (shot). Unfortunately, wether they are old or new meds, they all have nasty side effects. The med that Aaron will be on, starts out okay for the first week, but on the second week the double the dose and then some not so fun stuff could and most likely will appear. If it gets too bad, they can go back, readjust the dosing and then go back and more slowly introduce him to the larger doses. But, we really need him, if we can to get on those high doses quickly! The other downside to the medication is the time it will take before we actually get it! It will most likely take a month or more. I guess it is very hard to get the insurance companies and drug companies to work together to approve the drug. There is a big process and it will take some time. Once it does get approved they only have special pharmacies that actually make the drug. This type of med. is made in a pharmacy that will actually get it, and then mail it out to our home. So we are in a waiting game again with the drug. Once that it finally does come, Aaron will take it for 3 months and then we will go back and reevaluate if it is working. I just keep thinking, can you imagine if we had to have waited clear until September for our first appointment??? then it wouldn't have been until oct/nov until we even started the drug and who knows it if will even work. We are so glad we got in yesterday for this very reason!
After Dr. Foley left, the PA went ahead and introduced the drug to us, told us all the details, symptoms and what to expect. She then set us up for Aaron's next MRI and blood work. Then we were done. We walked out, overwhelmed but elated that finally we have some direction.
What a blessing and miracle that we were able to get in and even more so, to get going on ordering the drug and moving forward. We are finally to the point where we can actually accept the fact that MS will be part of the rest of our lives. It is still hard, I find myself at times wondering and having some sadness. I have listened to a lot of talks the past few days about faith vs. fear.
Common questions we keep getting and their answers:
1. If we had discovered Aaron had MS earlier, would it have helped?
Well, just like any disease, it is good to catch and start treating. But, we are not going to go there and wonder what if? We can't, and we can not dwell on it. Again, as I said before, it is what it is and we have to move forward.
2. What are Aaron's limitations going to be?
We don't know that exactly. MS affects everyone very differently. We are going to to ease him back into the his life and goals. Then we will see where it takes us. Who knows maybe it will push Aaron to new limits? Check out this link if you get a second and you will see what I mean:
http://www.ksl.com/?sid=
3. Do MS people die earlier than expected?
Yes, I know people have been wondering this question and I did to in the beginning. Just like us all, we don't know when our time will be to go. But, with most people with MS they say their life span should generally be the same. It is crucial though that they take good care of themselves and monitor the disease closely.
4. Is Aaron having symptoms now?
After receiving the steroid infusions for 3 days, Aaron's symptoms are about 90% gone. He still finds times he is having to focus on what he is saying and he has experienced some exhaustion. Other than that things are pretty normal. I am sure the shock of this all has caused some other things to be a little off, but hopefully between now and the time he starts his drug he will not have anymore flares. It so, he will go back for more steroid infusions.
5. What other things other than medication are you doing?
We've heard it all by now. We've read it all and keep getting told by many what we should do. In the long run, we are going to follow the advice of Dr. Foley. Aaron is going to keep doing a mild exercise program and change his diet, which means mine too. We are going to start slowly introducing ourselves to a more Mediterranean diet. We feel like this will be a good starting place for our family and then we will see where we go from there.
http://www.mayoclinic.com/health/mediterranean-diet/CL00011
Well if you really read this whole thing, I am impressed. This was quite the novel. It feels good though to get my thoughts out and to not have to retell the details over and over. Not that we mind talking to people about this, it is just easier to talk to people about it after they know more themselves.
We found out today that Saturday Aaron will have his second MRI and blood work. We are really hoping and praying they don't find any scarring or lesions on his spinal cord. We will keep you posted once we know more.
loves! from the Meacham's
Tuesday, July 9, 2013
A Miracle!!!
Today was a roller coaster of emotions. So much has happened in such a short amount of time. But, amongst the craziness, we had a miracle. I truly believe this miracle came from the many prayers given, from those who have been fasting for us and the special help of an amazing doctor. Thank you! The Lord heard those voices that spoke in our behalf. We truly feel so blessed this evening.
This morning I woke up with a lot of Anxiety. Today was the day I was suppose to call the Specialist's office back to see if I could find a way to get Aaron in sooner than August. I was scared that we wouldn't get in, that would have already filled their August slots and that we'd be waiting months before we got the help we were seeking. I of course had a very busy morning with other responsibilities so I didn't get to the phone until noon. Luckily, my sweet friend took Emmy for me for the afternoon so I could call and get things sorted out. I called as soon as I got the chance. But, stupid me didn't think that calling a Doctors office at noon is not a good time. They of course were out of the office until 1:30 for lunch. The next hour and half were awful. I kept thinking of what I could say to convince them that we needed to get in ASAP. Finally, at 1:30 I was able to get a hold of the specialists secretary. They were very nice, but gave me no hope. They pretty much told me that there was no way we were getting in earlier. She did say that if I had my referring doctor call and set the appointment up then they would maybe be able to get me in. I told her that he had already done that. She checked for Aaron's name and said it hadn't been done. I asked her if I should just make an appointment for and she said it wouldn't be until September now! My heart sank. She said to have me call the referring Doctor's office again and see if he could try again. If not, then call back and she'd set up the September appointment. After the conversation was over, an overwhelming sadness it me like a ton of bricks. I got on the computer and emailed the ER doctor that had referred us to the Specialist in the beginning. I felt so bad bugging him yet again. BUT, he was really our only hope at this point. I then sat down and between tears and prayers told the Lord that I had done all I could do, and the rest was in his hands. I had to come to terms that maybe the Lord wanted us to do something else, go a different direction or to be patient and wait. I decided I would wait one day to hear back from either the ER doctor or the specialist and if I didn't I would go ahead and make Aaron's appointment in September and we'd keep seeing the Nuerologist until then.
The Miracle:
A few hours later I was driving down to Provo to meet Aaron for a baby doctor appointment. I got a phone call from Aaron. He said, "Thank you for whatever you have done!" I was like what? What happened? Aaron replied that the specialists office had called and informed him that Dr. Foley had rearranged his schedule to make a slot for Aaron to get in TOMORROW! I about died when I heard. I burst into to tears, with every type of emotion bursting through. It was a miracle! Truly a miracle!
Once Aaron and I were alone and could talk he looked at me and said, this whole experience, the fact I went to the Riverton ER, we had Dr. Hasleton there, who just happened to know the best MS doctor in the west, and became our advocate, pretty much getting us into one of the hardest doctors to get into... is a complete miracle... no really... a sign that the Lord's hand is in this all.
Today a friend sent us this quote which was truly so fitting for the day:
As our day went on, many other things came about that has made me reflect how true it is that the Lord is with us through it all.
We did have some other tough news about some dear friends of ours. I sit here tonight and think, we truly can't predict what the future will hold, what our lot in life will be or how we will face the trials ahead. But, we can rely on the fact that they Lord will not leave us alone and that with his strength we can overcome all things. We also saw today the ultrasound of our soon to be baby. It was also an assurance to us both that this little life is another miracle in our lives. That it will truly be another testimony to us that the Lord loves us and knows us each.
We will keep you updated about how things go tomorrow. Loves to you all who care so much!
The Meacham's
This morning I woke up with a lot of Anxiety. Today was the day I was suppose to call the Specialist's office back to see if I could find a way to get Aaron in sooner than August. I was scared that we wouldn't get in, that would have already filled their August slots and that we'd be waiting months before we got the help we were seeking. I of course had a very busy morning with other responsibilities so I didn't get to the phone until noon. Luckily, my sweet friend took Emmy for me for the afternoon so I could call and get things sorted out. I called as soon as I got the chance. But, stupid me didn't think that calling a Doctors office at noon is not a good time. They of course were out of the office until 1:30 for lunch. The next hour and half were awful. I kept thinking of what I could say to convince them that we needed to get in ASAP. Finally, at 1:30 I was able to get a hold of the specialists secretary. They were very nice, but gave me no hope. They pretty much told me that there was no way we were getting in earlier. She did say that if I had my referring doctor call and set the appointment up then they would maybe be able to get me in. I told her that he had already done that. She checked for Aaron's name and said it hadn't been done. I asked her if I should just make an appointment for and she said it wouldn't be until September now! My heart sank. She said to have me call the referring Doctor's office again and see if he could try again. If not, then call back and she'd set up the September appointment. After the conversation was over, an overwhelming sadness it me like a ton of bricks. I got on the computer and emailed the ER doctor that had referred us to the Specialist in the beginning. I felt so bad bugging him yet again. BUT, he was really our only hope at this point. I then sat down and between tears and prayers told the Lord that I had done all I could do, and the rest was in his hands. I had to come to terms that maybe the Lord wanted us to do something else, go a different direction or to be patient and wait. I decided I would wait one day to hear back from either the ER doctor or the specialist and if I didn't I would go ahead and make Aaron's appointment in September and we'd keep seeing the Nuerologist until then.
The Miracle:
A few hours later I was driving down to Provo to meet Aaron for a baby doctor appointment. I got a phone call from Aaron. He said, "Thank you for whatever you have done!" I was like what? What happened? Aaron replied that the specialists office had called and informed him that Dr. Foley had rearranged his schedule to make a slot for Aaron to get in TOMORROW! I about died when I heard. I burst into to tears, with every type of emotion bursting through. It was a miracle! Truly a miracle!
Once Aaron and I were alone and could talk he looked at me and said, this whole experience, the fact I went to the Riverton ER, we had Dr. Hasleton there, who just happened to know the best MS doctor in the west, and became our advocate, pretty much getting us into one of the hardest doctors to get into... is a complete miracle... no really... a sign that the Lord's hand is in this all.
Today a friend sent us this quote which was truly so fitting for the day:
When through the deep waters I call thee to go,
The rivers of woe shall not thee overflow;
For I will be with thee, thy troubles to bless,
And sanctify to thee thy deepest distress
For I will be with thee, thy troubles to bless,
And sanctify to thee thy deepest distress
As our day went on, many other things came about that has made me reflect how true it is that the Lord is with us through it all.
We did have some other tough news about some dear friends of ours. I sit here tonight and think, we truly can't predict what the future will hold, what our lot in life will be or how we will face the trials ahead. But, we can rely on the fact that they Lord will not leave us alone and that with his strength we can overcome all things. We also saw today the ultrasound of our soon to be baby. It was also an assurance to us both that this little life is another miracle in our lives. That it will truly be another testimony to us that the Lord loves us and knows us each.
We will keep you updated about how things go tomorrow. Loves to you all who care so much!
The Meacham's
Saturday, July 6, 2013
July 6, 2013
I've had a few people ask for an update on things...
I wish I had more to tell, but Dr. Foley, the specialist we are waiting to see is out of town until July 9. So we are just waiting for him to get back and see what he says about seeing Aaron earlier than what they are telling us. We've been told a few times that it is important we get him in ASAP. We are still hoping, waiting and praying it will be soon.
I have been doing a lot of reading on MS. We've heard a ton of stories now of people with MS. We are trying to feel hopeful and are really looking forward to a talk with a specialist, someone who really knows the disease, and knows what Aaron can be doing other than medications like, diet, exercise, rest, and stress management.
How is Aaron doing? He is doing much better. His speech is pretty much back to normal and his face isn't sagging anymore. He is still pretty exhausted. Most people look at him and tell me he looks tired. They are right, he is. But, he is trying very hard to stay positive, get back to his somewhat normal routine and try to stay focused on his family, calling, work and schooling. I know that he would love to be back to 100%, but we are coming to grips that this may not happen for a little while.
Thanks everyone for your love, support, text, phone calls, and prayers. We've truly learned why family and friends are so important while we are here on our earthly journey. We are becoming so much more aware of the struggles that others face and are in awe at the faith, fortitude and strength they have. It is such and example and help to us. We hope to become like many of you. We are now, more than ever so grateful for our belief and hope through the Atonement of Jesus Christ. We know that He lives, that He loves us and is our healer and strength.
May God bless you all.
Love,
The Meacham's
Tuesday, July 2, 2013
Thinking
I can’t
sleep again, for some reason tonight, everything keeps going over and over in my mind.
Today was a rough day for me. The girls were so tired and have been acting up,
I wasn't feeling well either, and Aaron had a longer day. He said a comment
tonight before bed that has been playing over and over in my mind. He said,
"We've tried to be normal, and things have suddenly started to be a dream,
but then the reminder comes that this is a forever thing, and isn't going away."
It through me for a loop, and I realized the past few days I have really just
tried to pretend this isn't real. I've stayed busy and haven't thought much
about the whole picture of it. But, then at moments, some type of reminder of the
whole horror story comes flooding back to memory. I know we will find a
"new" normal as everyone tells us we will. But, this waiting game,
and unknown is just so hard.
Aaron attempted work today. He
got up and headed out the door. He worked hard all morning. But, by the
afternoon he was exhausted. His sweet boss, could tell, and ordered him home. I
know how tired he was, because he actually did come home and then slept for an
hour. If you know Aaron, that never happens! After he felt a little better, but
was still ready for bed early. He is going to try again tomorrow. But, luckily
will have the 4th off and then Friday he is going to take off. We've had to
make some changes to our Holiday celebrations, which is fine. I just think
Aaron feels so bad about it. But, we have to just realize that is going to be
part of life too. There will be limitations to things, and that is okay. I just
hate that Aaron feels bad about it.
Monday, July 1, 2013
1 week
July 1, 2013
Today marks one week since Aaron's diagnosis. It is amazing how much change can happen in that time in a person's life. Change physically, spiritually, and emotionally. We feel life has taken on a new meaning and perspective. Which I have to say is a good thing... in the way it has refocused us and helped to start looking at things in a better light. I've had 3 other times in life where I've had a true refocus and change in my life. The first was when I was called to be a missionary for The Church of Jesus Christ of Latter Day Saints. How could that not be a complete change and refocus? Suddenly your life is centered on serving, teaching and loving others. You are striving everyday to serve the Lord and you have to completely forget yourself. That was a great time in life. The second time of big change came when I met and married my sweetheart Aaron. I realized what an amazing person he was and I desired to be a good person like him and for him. The third time comes with a quick story. When I was about 5 months pregnant with our first child, Aaron and I landed ourselves in the instacare. We were moving some furniture onto a trailer, the trailer slipped and it cut Aaron's ankle really bad. While the Doctor was sewing us up, he was teasing Aaron how in a few months he'd be switching places with me. He'd be the one holding my hand, while I was experiencing the pain. He then said a statement that has stuck with Aaron and I ever sense. He said something like this, "Once you have that baby, your view of the world will change. You will look at everything so differently. You won't be able to watch T.V. or see a billboard sign the same. Suddenly, you will be a changed person, one who protects, guides and loves more than you'd ever imagined you would." He was right, that Doctor. Our world did change completely when our children were born. The music, movies, things we said and our actions. These little kiddos changed us, made us want to be the best we could be and to give them the best world possible. Well, Aaron and I have discussed how this week have been one of those poignant moments where the way we look at life, once again has changed completely. Suddenly the things that were a huge concern a few weeks ago have hardly any significance... suddenly relationships are so much more important, the gospel and our purpose here has even a deeper meaning and my focus of my daily life has changed. I'm not trying to say we are these amazing people and that we've got it all figured out, we've just learned so much and have such a different view on life. I find it to be another little tender mercy of our Heavenly Father. I look at it as a blessing admist the trial.
Today, I just want to focus on the positive for a minute. The good that has come of this.
1. Aaron has been super busy before all of this. Since he's been sick, he has been able to stay home for a whole week! Though we haven't been out playing, the time spent together has been so good for our little family. The girls cling to him non-stop and I've had the chance to really grow so much closer to him, which leads me to the second...
2. Aaron and I have grown closer by leaps and bounds. Our communication has opened up so much more, we've discussed topics we've never had the courage to discuss and we've shared fears, hopes and dreams that we've never dared to believe.
3. Our study of the gospel has changed. Suddenly, we have a new focus and reason to study. It has pushed at us to open our eyes to new things and thoughts.
4. We've realized that we have amazing friends and family. We both HATE asking others to do things for us, we don't like attention or to have to ask for help. Boy, did we learn that sometimes in life it is okay to have to lean on others. This week has showed me why serving others is vital. Everyone has those moments in life when they can't do it all on their own. Our goal is to be better about helping others and hopefully showing others the love we have felt this week.
5. We have a new reason to take life a little more serious when it comes to our health. It is a perfect time for us to find a new balance and why of life.
There are so many other good that we've picked up on. Though this is only the beginning of a long journey ahead, it is also a good time to realize that staying positive and focused on the good can help us find greater peace and hope in our lives.
Aaron Update:
Aaron is doing good today. His speech is almost back to normal!!! He went to church yesterday and was able to do his calling. I think it was great for him to get his mind off of things and just stay busy. He is going to go to work tomorrow. I am a little nervous about it, mainly because he has been so tired and also because stress seems to worsen his condition. But, I know it will be good for him to get out, get his mind off of things and to do what he loves to do. We are still waiting on what's next.
Thanks again for caring enough to read my long ramblings.
With love,
The Meacham's
Today marks one week since Aaron's diagnosis. It is amazing how much change can happen in that time in a person's life. Change physically, spiritually, and emotionally. We feel life has taken on a new meaning and perspective. Which I have to say is a good thing... in the way it has refocused us and helped to start looking at things in a better light. I've had 3 other times in life where I've had a true refocus and change in my life. The first was when I was called to be a missionary for The Church of Jesus Christ of Latter Day Saints. How could that not be a complete change and refocus? Suddenly your life is centered on serving, teaching and loving others. You are striving everyday to serve the Lord and you have to completely forget yourself. That was a great time in life. The second time of big change came when I met and married my sweetheart Aaron. I realized what an amazing person he was and I desired to be a good person like him and for him. The third time comes with a quick story. When I was about 5 months pregnant with our first child, Aaron and I landed ourselves in the instacare. We were moving some furniture onto a trailer, the trailer slipped and it cut Aaron's ankle really bad. While the Doctor was sewing us up, he was teasing Aaron how in a few months he'd be switching places with me. He'd be the one holding my hand, while I was experiencing the pain. He then said a statement that has stuck with Aaron and I ever sense. He said something like this, "Once you have that baby, your view of the world will change. You will look at everything so differently. You won't be able to watch T.V. or see a billboard sign the same. Suddenly, you will be a changed person, one who protects, guides and loves more than you'd ever imagined you would." He was right, that Doctor. Our world did change completely when our children were born. The music, movies, things we said and our actions. These little kiddos changed us, made us want to be the best we could be and to give them the best world possible. Well, Aaron and I have discussed how this week have been one of those poignant moments where the way we look at life, once again has changed completely. Suddenly the things that were a huge concern a few weeks ago have hardly any significance... suddenly relationships are so much more important, the gospel and our purpose here has even a deeper meaning and my focus of my daily life has changed. I'm not trying to say we are these amazing people and that we've got it all figured out, we've just learned so much and have such a different view on life. I find it to be another little tender mercy of our Heavenly Father. I look at it as a blessing admist the trial.
Today, I just want to focus on the positive for a minute. The good that has come of this.
1. Aaron has been super busy before all of this. Since he's been sick, he has been able to stay home for a whole week! Though we haven't been out playing, the time spent together has been so good for our little family. The girls cling to him non-stop and I've had the chance to really grow so much closer to him, which leads me to the second...
2. Aaron and I have grown closer by leaps and bounds. Our communication has opened up so much more, we've discussed topics we've never had the courage to discuss and we've shared fears, hopes and dreams that we've never dared to believe.
3. Our study of the gospel has changed. Suddenly, we have a new focus and reason to study. It has pushed at us to open our eyes to new things and thoughts.
4. We've realized that we have amazing friends and family. We both HATE asking others to do things for us, we don't like attention or to have to ask for help. Boy, did we learn that sometimes in life it is okay to have to lean on others. This week has showed me why serving others is vital. Everyone has those moments in life when they can't do it all on their own. Our goal is to be better about helping others and hopefully showing others the love we have felt this week.
5. We have a new reason to take life a little more serious when it comes to our health. It is a perfect time for us to find a new balance and why of life.
There are so many other good that we've picked up on. Though this is only the beginning of a long journey ahead, it is also a good time to realize that staying positive and focused on the good can help us find greater peace and hope in our lives.
Aaron Update:
Aaron is doing good today. His speech is almost back to normal!!! He went to church yesterday and was able to do his calling. I think it was great for him to get his mind off of things and just stay busy. He is going to go to work tomorrow. I am a little nervous about it, mainly because he has been so tired and also because stress seems to worsen his condition. But, I know it will be good for him to get out, get his mind off of things and to do what he loves to do. We are still waiting on what's next.
Thanks again for caring enough to read my long ramblings.
With love,
The Meacham's
Subscribe to:
Posts (Atom)