Friday, November 15, 2013: Of course our baby is coming any day now and Aaron is starting to have symptoms of another MS attack. We are waiting until Monday to see if the symptoms subside, but if not we will treat it next week hopefully and get him back to normal before this little guy comes! What does this all mean? We don't know. He's not suppose to have one while on the meds, they are suppose to keep the MS in remission. Who knows! This dumb disease and all the unanswered questions. I feel bad now because I never did email the PA with my questions, I just talked to another person with MS. Which was helpful, but obviously we need to call in a get some answers.
Monday, November 25: Well we've had a whirlwind of a week! I never finished my post above and we never really took care of Aaron because we had early entrance into this world by our new little guy Taycen Aaron Meacham. Taycen showed up early Sunday afternoon, November 17, 2013. Only two days after I started this post above.
On Saturday, we didn't do much since Aaron wasn't feeling super hot and I didn't feel to great either. Saturday night we didn't get any sleep since I was in labor and poor Aaron had to sit next to me and as I moaned all night long. This caused him to be exhausted on Sunday and by the time night came around he was pretty sick. Unfortunately, the hospital couch chair they provide for a husband to sleep on isn't the place you want to sleep when sick. Aaron toughed it out though so he could be there with me and slept there anyways.
Friday, November 29: Poor guy. Nothing like experincing the birth of your newest child and feeling sick. I sometimes wonder, is this how life will always be? Since then his symptoms have slowly begun to cease and he doesn't feel the numbness anymore. He has had several extreme flushing episodes. I am frustrated because the drugs side effects like flushing should have subsided by now. We've looked into going to the Mayo Clinic in Arizona to get some more answers, but of course our insurance plan we are on doesn't cover it and to move to the plan that does cover it would cost us an arm and a leg to be on. We aren't sure paying the full price for the visit ourselves would be worth it. I am starting to think we should look into just visiting another doctor to get a second opinion on things. Aaron has decided to look a little more into the Mayo Clinic deal and see if there aren't some other options we have as far as ways to pay for the visit, and extra testing they may require. Whatever we do, it will not happen until after the Holiday madness. I am anxious to see Aaron feeling well and back to his regular self.
The hardest part lately, sounds very selfish on my part, but the guilt I am feeling right now. Since Aaron needs his sleep, I am trying to deal with our newborn all on my own at nights. Of course Taycen is a horrible night sleeper and I am starting to be worn down. Aaron wants to help, but is struggling with the lack of sleep he is getting already. I hate that at times I am angry, not at Aaron, but just at the circumstance. I feel horrible the few times I have woken him up in the middle of the night for help, because I was in desperate need of an hour of sleep. I just hate feeling like I am causing him to lose sleep and not feel well, but I also feel like I can't do this all alone right now either. This is the battle I deal with every night. I jump now at every sound Taycen makes because I just don't want anything to wake Aaron if I can help it. It's really been an eye opener to what life with MS may offer at times. I know it sounds silly, but at 2:30 in the morning, it is hard.
The good note of this all is I realize how lucky we are to have Aaron in our lives. He is pretty healthy for the circumstances, he is working, he is doing school and he is pushing through everything with determination. It is amazing and he is my hero! My friend from High School lost her husband 2 weeks ago unexpectedly. It was devastating to hear, and I read a few posts and things from her, my heart broke. She is left on this earth, with 4 children to raise alone. I hear that, and how can I not be so grateful and feel so blessed to still have a healthy, loving and amazing husband here with me.
Though things are a little bit harder than they used to be, I have Aaron here and I am not alone. So I guess I can complain a bit since this is my blog to complain on, but truly I have to remember the how blessed we are. With the birth of Taycen, we both feel he is a little blessing sent here to keep Aaron healthy, active and strong, so that he is around to help raise our little man. Welcome little Taycen, what a blessing and what an time in life to push through the hard and count our blessings.
love The Meacham's
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