Saturday, June 29, 2013

Day 2 of our Journey



Today was less eventful... thankfully! We are still just in the state of shock and the unknown. Neither of us got more than an hours sleep last night. In fact around 2 a.m. we both got up out of bed and headed down stairs to work on things. I finally made Aaron come back to bed with me at 3 and we finally fell asleep around 4:30, I think. Anyways, needless today we are tired, thus making us more emotional. Poor Aaron is drained. He is trying so hard to stay positive and I am so proud of his strength and faith. Maybe someday I will be more like him.

We are trying to keep things as normal as we can for the girls. I took them to swim lessons today and they enjoyed it a lot. It was a nice to get away from the wait for a bit and think about something else. Once back home we ate a quick lunch and then dropped Emmy to a friends. She had dance this afternoon and her friends mom was so sweet to take her. After we headed back to Riverton. We first dropped Elsy off to play with Grandma Meacham and then headed to the hospital. Thanks Grandma.

Every time I look at that hospital I get weak and sick. It will forever hold the news that has changed our lives. Once back in the ER they checked Aaron in and then it was time to face the facts once again. The sweet nurse admitting us, at first had no clue why we were there. She was just chatting away and taking Aaron's vitals. Once she saw Aaron's records her face just sank and her tone changed. You could see the sadness feel her eyes and she just began to apologize to us. "A new diagnosis, MS... a young couple with two young girls, one on the way, Oh my, I am so sorry!" She was so sweet. She quickly changed from apologies to all the good things she could remember about the disease. It is kind of the response we've started to notice most people are having. It was sweet and we appreciated her kind tone and warmth with us. It makes the hospital so much more pleasant to be at. Thanks nurse Jenny Budd!

We then were escorted to a nice big open room. Today must have not been busy like yesterday. In fact the doctor treating us said he had never worked at Riverton and seen such a busy day like the day we had first come in on. Our doctor has been amazing! We feel very blessed that Aaron ended up at the Riverton hospital, even though it is so far from home. We've been so well taken care of. He checked Aaron out and we discussed his symptoms. Unfortunately, they have not improved, but today seemed worse. We are hoping with the second dose of steroids given today he will start seeing improvement. The Dr. said everything else looked great! We are lucky that so far they only thing bugging Aaron is his speech and sagging mouth. Then it was time for the steroids. We kind of like that quiet time together. It has been a good time to chat and just be alone together to our thoughts. As soon as the drip was done, we could leave. 

Off to get the girls and home to our somewhat normal routine. We had three friends drop by with dinner and treats. It was nice, but very draining trying to retell the story over and over and comforting them. Aaron was so positive with everyone though and made them feel better. I wish I could do the same. One friend mentioned her heart was breaking because she didn't think Aaron was the type of man that would ever need this type of trial. Good people like him she said should never have to go through this. It just made me smile. I am one lucky girl to have such a great boy by my side.

We were also able to chat with my cousin Roy Hammond this evening who is a radiologist. He was very positive and upbeat about Aaron's condition. He mentioned that really we just can't dwell on the what if's and this could happen, but to focus on the most positive outcome to his disease. I agree, that will be our goal. I hope to get there soon. We really appreciated his willingness to take time to call and his sweet offering to fast for our family and Aaron. I felt very blessed to have a good cousin like him to call.

Aaron received several emails today too from co-workers. So many encouraging words and support. It truly has been overwhelming! He also got a call from a co-worker whose wife has MS. He was honest about her condition, but was also very encouraging. We actually hope to meet with him Thursday after our Dr. appointment to hear her story.

After the girls were in bed and we are finally left to ourselves, there has been a lot of silence. I think we are just so drained right now that silence is almost a welcome song. We did send an email out to most of our good family and friends. We are just not prepared to continue telling everyone the story right now. It is just too hard. I think we will be able to more so soon, but felt strongly this was the best way to communicate to the ones we love our newest phase in life.

We still haven't crossed the line to research and learn more yet. I think we are to scared to face that all right now. We feel that we will learn what we need as we go along.

We just feel very blessed tonight and grateful. Day 2 is over. Here's hoping to tonight that tonight we get some sleep!

There have been lots of cuddles at our house. The girls love having dad around! This morning climbed into bed and snuggled right up to her dad...
Tender moments like these we never want to forget!

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