Just a quick update...
Saturday morning Aaron took his last pill and Saturday afternoon his new drugs showed up! They overnighted them for us. It honestly was a miracle or should I say a huge blessing from The Lord! I've honestly never witnessed so many personal miracle/blessings in my life in such a short time. The Lord is truly mindful of us. Aaron is back on track with medication and we have a year of cost free medication! I have to express my gratitude to The Lord for this blessing. Things are tight with medical bills and new baby etc.. Truly it is one blessing after another admist the craziness of this all.
Thanks to those others who have quietly offered help, support and prayers. It has all been such a help! How did we get so blessed with so many amazing people in our lives???
Loves to you all!
The Meachams
Monday, September 23, 2013
Thursday, September 19, 2013
The $100 Pill
We found out this week our insurance doesn't cover Aaron's medication. AHHHHH! We were misinformed by the pharmacy in the beginning on how the first two months prescriptions were being filled. (We were on an introductory program that cost only $10 a month)
While at the Techfidera dinner Aaron spoke with a few others who had the same insurance as we do and discovered he was not being covered?!?!! We called the insurance the next day... sure enough, we weren't being covered. Aaron called the drug company and was informed that our next bill would cost $3700! Ouch! We were just sick. What do we do?
Luckily, we found out from the drug company there is a program that you can qualify for to receive a one years supply pretty much free. We were anxious to see if we could get in on this program. Aaron applied last week, but was told it would take 3-4 business days before we would know. We were hopeful we would qualify since we have 3 kids and our income isn't substantial by any means. But, we didn't hear anything this whole week and Aaron's meds are running low. (We were told if he went off them suddenly that he would most likely relapse!) So, yes, we've been a little anxious and stressed.
Today we received the wonderful news that Aaron does qualify for the program... What a blessing!!!! We are now just waiting to hear from the pharmacy when the meds will be sent and we are just hoping they get here before his supply is gone.
Our other hope is that the insurance company will pick up this medication soon. They only review new meds once a year in November. So pray that in November that insurance picks up this med. or in a year we will have to go a different route, which would be like taking a step back.
Here's to the $100 pill that is helping keep my hubby healthy!
While at the Techfidera dinner Aaron spoke with a few others who had the same insurance as we do and discovered he was not being covered?!?!! We called the insurance the next day... sure enough, we weren't being covered. Aaron called the drug company and was informed that our next bill would cost $3700! Ouch! We were just sick. What do we do?
Luckily, we found out from the drug company there is a program that you can qualify for to receive a one years supply pretty much free. We were anxious to see if we could get in on this program. Aaron applied last week, but was told it would take 3-4 business days before we would know. We were hopeful we would qualify since we have 3 kids and our income isn't substantial by any means. But, we didn't hear anything this whole week and Aaron's meds are running low. (We were told if he went off them suddenly that he would most likely relapse!) So, yes, we've been a little anxious and stressed.
Today we received the wonderful news that Aaron does qualify for the program... What a blessing!!!! We are now just waiting to hear from the pharmacy when the meds will be sent and we are just hoping they get here before his supply is gone.
Our other hope is that the insurance company will pick up this medication soon. They only review new meds once a year in November. So pray that in November that insurance picks up this med. or in a year we will have to go a different route, which would be like taking a step back.
Here's to the $100 pill that is helping keep my hubby healthy!
Friday, September 13, 2013
Tecfidera Dinner
Aaron was able to attend a Dinner tonight that was put on by the drug company he gets his medication from. I was bummed I missed out, but glad he was able to go. They had dinner, presentation and then Q&A with his actual specialist he goes to. The presentation was put on by the drug company and was of course very cheesy and scripted. After though they talked a lot about MS and then had people write down questions for Dr. Foley our specialist to answer. Aaron learned a lot, and I am kicking myself I wasn't there to learn more too. We've had a few questions about the drug that were answered, so that was really good.
I think it was a hard night though for Aaron too. I feel bad I wasn't there to support him. I think seeing so many people there with MS and so many of them struggling with some major health issues was hard. He came home positive about the information learned, but a little down about the issues, people and things he saw. I think it was yet another wake up call to us both, that this isn't going away and the pretending that nothing is wrong will occasionally come back blarring in our faces. We've really tried to be our normal selves, which is good, but then you have moments like tonight that just make it hard.
We are grateful he is on this medication and hope/feel that it is the right one for now. We are learning we may have some complications with our insurance about it and are looking into all of that right now. It is so scary to think how much meds really do cost and how lucky we are to have health insurance that can cover most of it, at least we hope :)
We are trying to continue to stay positive and look at this as a day to day thing. We can't see the future and just have to trust that it will be good, that Aaron will be healthy and that we can live life to the fullest!
I think it was a hard night though for Aaron too. I feel bad I wasn't there to support him. I think seeing so many people there with MS and so many of them struggling with some major health issues was hard. He came home positive about the information learned, but a little down about the issues, people and things he saw. I think it was yet another wake up call to us both, that this isn't going away and the pretending that nothing is wrong will occasionally come back blarring in our faces. We've really tried to be our normal selves, which is good, but then you have moments like tonight that just make it hard.
We are grateful he is on this medication and hope/feel that it is the right one for now. We are learning we may have some complications with our insurance about it and are looking into all of that right now. It is so scary to think how much meds really do cost and how lucky we are to have health insurance that can cover most of it, at least we hope :)
We are trying to continue to stay positive and look at this as a day to day thing. We can't see the future and just have to trust that it will be good, that Aaron will be healthy and that we can live life to the fullest!
Sunday, September 8, 2013
Sick
This past week Emmy came home with a little stomach bug that she caught. She was only sick for about 24 hours and then back to her normal self, luckily! Unluckily (if that is a word) Aaron caught the bug and his wasn't so easy. It has taken him almost 5 days to recover and get back to his regular self and eating. I've never seen the poor guy this sick. We wondered why it hit him so hard, and why he was the only one to pick the bug up. We started looking into his medication he takes for MS and saw that one of the things it does is decreases the white blood cells. Which means he is more prone to catching sickness and having a harder time getting rid of it. This week was a prime example of that I suppose. We kept thinking Elsy and I would get the bug, but we were fine and Emmy only felt really sick for a few hours. But poor Aaron, missed 3 days of work and didn't eat for 4 days. Yes, he looks like he's lost at least 10 lbs. which is a lot on his already slender body. (Don't worry, I'm making brownies for him tomorrow, which are illegal in his diet, but I know he can't say no too and will help plump him up a bit!)
Anyways, it is just amazing to me how each experience that we come to, is so different now as we face it with this disease. Things that once seemed so easy and not a big deal in life, now seem to impact us so much more. He was able to receive a blessing today from his father and is feeling much better.
I've decided the hardest part of this whole journey so far, is watching him struggle with this new disease and the impacts it is having on his life and not being able to do much about it. Aaron is trying so hard to stay positive and press forward. I know though that he hates the new limitations it is having on him and the way it has seemed to slow him down a bit in the fast paced life he lives. He will come out on top eventually, and I know we will get him to what we call a new normal. I think this week was just hard for us, a set back and another eye opener that we don't have control of everything. But, it is also a great reminder to us that we can and will move forward and really can live with these life changes. We know that everyone has their challenges. We never want to seem like we are complaining or thinking our lot in life is harder than someone else. We do feel that for us, this is a time of growth, stretching and faith. We do feel that the Lord is there watching over and helping us. We also are so grateful for the amazing friends and family we have who are supporting us so much. We definitely need to give a shout out to our parents. Both have been great, Aaron's parents have been our constant babysitters, supporters and his dad has been a huge help with blessings and guidance. My dad has been here 3 weeks in a row mowing and taking care of our yard, and both my parents have also been baby sitting and bending over backwards to help. How blessed we are.
Onto another week we go. Love the Meacham's
Anyways, it is just amazing to me how each experience that we come to, is so different now as we face it with this disease. Things that once seemed so easy and not a big deal in life, now seem to impact us so much more. He was able to receive a blessing today from his father and is feeling much better.
I've decided the hardest part of this whole journey so far, is watching him struggle with this new disease and the impacts it is having on his life and not being able to do much about it. Aaron is trying so hard to stay positive and press forward. I know though that he hates the new limitations it is having on him and the way it has seemed to slow him down a bit in the fast paced life he lives. He will come out on top eventually, and I know we will get him to what we call a new normal. I think this week was just hard for us, a set back and another eye opener that we don't have control of everything. But, it is also a great reminder to us that we can and will move forward and really can live with these life changes. We know that everyone has their challenges. We never want to seem like we are complaining or thinking our lot in life is harder than someone else. We do feel that for us, this is a time of growth, stretching and faith. We do feel that the Lord is there watching over and helping us. We also are so grateful for the amazing friends and family we have who are supporting us so much. We definitely need to give a shout out to our parents. Both have been great, Aaron's parents have been our constant babysitters, supporters and his dad has been a huge help with blessings and guidance. My dad has been here 3 weeks in a row mowing and taking care of our yard, and both my parents have also been baby sitting and bending over backwards to help. How blessed we are.
Onto another week we go. Love the Meacham's
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