Aaron was able to attend a Dinner tonight that was put on by the drug company he gets his medication from. I was bummed I missed out, but glad he was able to go. They had dinner, presentation and then Q&A with his actual specialist he goes to. The presentation was put on by the drug company and was of course very cheesy and scripted. After though they talked a lot about MS and then had people write down questions for Dr. Foley our specialist to answer. Aaron learned a lot, and I am kicking myself I wasn't there to learn more too. We've had a few questions about the drug that were answered, so that was really good.
I think it was a hard night though for Aaron too. I feel bad I wasn't there to support him. I think seeing so many people there with MS and so many of them struggling with some major health issues was hard. He came home positive about the information learned, but a little down about the issues, people and things he saw. I think it was yet another wake up call to us both, that this isn't going away and the pretending that nothing is wrong will occasionally come back blarring in our faces. We've really tried to be our normal selves, which is good, but then you have moments like tonight that just make it hard.
We are grateful he is on this medication and hope/feel that it is the right one for now. We are learning we may have some complications with our insurance about it and are looking into all of that right now. It is so scary to think how much meds really do cost and how lucky we are to have health insurance that can cover most of it, at least we hope :)
We are trying to continue to stay positive and look at this as a day to day thing. We can't see the future and just have to trust that it will be good, that Aaron will be healthy and that we can live life to the fullest!
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