Wow, I didn't realize how long its been since I last wrote on this blog. I'm sure no one reads it anymore, but its good for me and our memory books.
Aaron's physically felt fairly well since my last post of him graduating and having that stress out of his life. He actually just got his paper completely turned in, accepted and published! We are now finally waiting for the "real" degree to come in the mail.
MS we are learning is a disease of ups and down that can effect you daily. People ask us how he is doing. Which is a hard one to answer. Because, yes, he is doing better than the past. He hasn't been in for steroids in a few months and the meds seem to working for the most part. But, he physically has daily problems, these come and range in differing symptoms and degrees of pain. He is learning what things effect what and what he can do to minimize things. The hard part is when something new comes up and we aren't sure what is causing it and how to minimize it. When you look at Aaron you would never know he is sick. He is such an upbeat, positive, loving and kind person. His set backs he deals with quietly and I'm honestly the only person who picks up on these things and I'm sure I even miss some of them at times. Like today, he looked pale, I could tell he was struggling with his speech and feeling tired. He showed me he has been biting his lip consecutively, and has a huge sore on the inside of his mouth. Yet, he pushes through it, tries to fast, does a full day at church and meetings, and worries about others the whole time. I forced him to eat lunch and lay down for a little bit today, but of course that lasted for a few minutes before he had to jump on the busy bandwagon again with life.
I pray that he never has the intense limitations that MS can bring like, a cane, wheelchair or other extremely physical debilitating effects. We feel blessed that we've escaped those thus far. So we will continue to be grateful for that.
We saw his specialist this past week. There's not much to share. We are learning that the MRI is really the only way other than symptoms to track and know how he is doing. We are planning on getting one late March, early April. From there we will decide on the direction we should take him as far as medication and treatments go.
We received good news that most likely the medicine that Aaron's on now, will not effect out new baby that will be born in March. We've been really nervous about it, because there are some drugs out there that can cause big problems in the development of babies. We were never planning on having us get pregnant while on medication, but life has a way of surprising you. We feel at peace about the whole thing now though and are grateful that all looks well with the development of the baby so far.
That's pretty much the summary of everything right now. Hope this helps those who are wondering. We are happy to have a active, happy dad in our lives, despite the hardships. We are grateful he has done so well these past 6 months and hoping it continues.
Thanks for the update. I bet more people read this than you think. Aaron has a big fan club out there.
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