Appointment postponed

Sorry for the lack of writing the past few weeks. We are kind of in a limbo right now and don't have much to update on. Aaron went in to see the PA a few weeks ago. She pretty much advised us to wait to go see the Specialist until Aaron has been on the medication for at least 3 months. Then we can really discuss if the medication is doing what it needs to do, compare symptoms, and discuss everything after we've had some time to observe. I agree with waiting a few more weeks, even though I have a ton of questions still. They will be answered and we will get it all figured out eventually. We've been keeping a symptom journal and I make Aaron daily report to me how he has felt that day. We are slowly starting to see patterns of if he doesn't sleep well, if he gets stressed, if he takes his medicine at a later time or if the conditions Aaron is in are too out of the ordinary for him. We are hoping most of the symptoms are medicine related and not MS symptoms. It is hard to distinguish, but we feel tracking it and watching when and why they happen will help us collect the data we need when we go in to see the doctor in October. Aaron did get some more blood work done. Mainly to see if his body could tolerate and handle an even more effective and aggressive medicine. So that is something we are going to be looking into at the appointment too.

We will keep you posted after that appointment. Until then we are just trying to live life normally, help support Aaron through the tougher days and spend time as a family before we grow even bigger in a few months. We hope to have some answers before the other big changes come in our lives. If you know me, I like things in order and not so up in the air. It would be nice to not be living in such a limbo, but I think this disease will always be that way in some way and we will all just have to get used to that.

Aaron has taken the semester off from school. We hope that by December we will have a little better knowledge of how to handle his disease and how to keep him feeling well enough to focus on more things. Until then we felt it was a good idea for him to take that stress off and focus on getting better. It was a very hard decision, but we feel good about it.

Thanks for all the continued love and support throughout this whole thing! It is really becoming a day to day thing. We are just trying to enjoy the little things and time that life has to offer. We feel extremely blessed right now and feel that we are being watched over and protected.