Yucky HEAT!

We learned the hard way yesterday why every person we've met with MS says "avoid the heat." We went out for a fun summer family outing outdoors yesterday. It was a great time, but Aaron was super sluggish. By the time we got home a few hours later, I couldn't believe how flushed and exhausted her looked. We just had no idea what the heat could or would do to him. Unfortunately, it lead to Aaron feeling not so hot and falling asleep at 8. His eyes were hurting, his head was on fire and he just felt awful. It was a big reality check that life indeed is different in our little world. We keep trying to get back to normal and do the things we usually do and love, but today was another wake up call... life will never be the same. I know this seems so silly. But, it is hard. Aaron is just struggling with his health, energy and feeling up to par. I had no idea how hard it would be to see the one you love struggle. He hates that he feels this way, and so badly wants to get back to normal. We meet with the doctor one week from today. We hope to get some more clarity on the whole NMO situation and on Aaron's health. It's hard to know why he is feeling the way he is and what is causing it. Is it the drugs, the MS or the infusion effects? Hopefully we will know soon! :)

I guess we are still in the learning phases of the disease. Eventually I know we will figure this all out! Somedays it is still a shocker to the system. Thank goodness we aren't dealing with NMO. We are so grateful for that!

I guess we will be staying out of the heat and staying cool more often.